My recovery has developed very quickly since August. Initially I was on a weight gain regime, then onto maintenance, and now I’m learning some flexibility.
My nutritionist agreed that I could try a new food this week. We didn’t specify what that should be, but that I could choose it on the day.
Yesterday I ate at East Street in Rathborne Place, just off of Oxford Street in London. East Street has a menu of many Asian foods. I chose a hot and spicy Thai chicken dish with Jasmine rice. Now that’s the kind of food I want to eat more off. It was delicious. The service was quick, friendly and accommodating (I changed tables because I felt a draft where I initially sat), the food was tasty, and the restaurant was stylish.
I needed some new clothes, and purchased a fab pink jumper and matching pink shirt, pink really suits me, but my real self-care was buying a bath bomb and soap from Lush.
This was a reward for me having the courage to follow my heart and move to London. The photo of the bath bomb isn’t good, but the bath was. I smell like a fizzy lemon. Truly lush.
It was cold and wet in London yesterday. Not my favourite conditions to be outside in, but there’s always a photographic opportunity if we seek it out.
Firstly – I know have a working title for my assignment… “The Emotional States Of Anorexia”. The emotions that I’m photographing all relate to different emotions that I have experienced that relate to my anorexia.
Defiance (fuck you! I won’t eat and you can’t make me)
Pride (Yes – another target weight hit)
Rage (I fucking hate my self)
Joy (I can wear those new skinny jeans now I’ve hit that weight)
Fear (I’m so fucking scared of eating, l will have to kill myself if I do)
Grief (I hurt so much I can’t cope anymore)
Now I know that you know that I hate my photo being taken. I hate seeing photos of myself. It’s taken me sometime to build up the willingness to photograph myself. Tomorrow and Thursday I have the pain of seeing my face when I develop them. Fuck sake. Why am I doing this. I could have used someone else as the model.
Thing is I can’t. I know that these emotions are extreme and trying to work with a model and talking them into these states is gonna be challenging and time-consuming. I know these emotions and the thoughts that go with them. They’ve been a second skin that I’ve lived in. Consequently it’s taken me an hour to make these photos.
I’ve not liked doing it at all, but, I’ve got the photos that I need. I’ve captured the emotions. Am I putting them up on here? Not bloody likely. Once I’ve embroidered over them then I will publish them, but they, of themselves, are not the final piece of work. They are just part of a still life audio, visual installation that will be juxtaposed with the Laura Letinsky photography.
If I put my displeasure about the photos of myself to the side, I feel excited. This is coming together. My creative vision is clear, I can see the outcome.
Will I exhibit the six pieces I am creating? Damn right if I can get the right curator and the right space. It’s weird how I can feel so confident of that when I can’t stand seeing my photo. Perhaps it’s because my portrait is just a part of a larger piece of work, that my face will be sewn over? Perhaps it’s just a dichotomy of the human experience.
If you have an eating disorder, the chances are that you’ve shut out your body’s desires for so long that you don’t know how to recognise cues for hunger or fullness.
I am having to practice mindfulness whilst I eat to try to relearn awareness of these cues. There is improvement, and I now sometimes feel hungry or full.
My nutritionist is helping me with this process, and I know have a new goal. I still have a meal plan, but rather than having a set menu of meals and snacks every day of the week, I can now choose what I want from that plan at each meal.
My fridge freezer and cupboards are now full, it feels so grown up. Some days it’s easy for me to choose, and at others I can only stick with what I would have previously had for that meal, on that day. Progress not perfection.
Chicken with walnuts, fried with peppers and soy sauce is still one of my favourites.
Right now I’m very pleased with the progress that I’m making. Food is certainly something that I’m enjoying. The obsessive thoughts that I had around food have decreased considerably, but they are certainly intense when my emotions are strong.
The most difficult time over the Christmas period was when shopping the day after I arrived in Cork. I had a shopping list for breakfasts, lunch and snacks, but I found being in a new shop, in a new town and being around so much food was challenging.
Profiterole, cheesecake and Ben and Jerry.
I heavily over-ate one night whilst I was in Cork, and I had a couple of nights where I had a few chocolates. So what! It’s no big deal, and I didn’t go into guilt and shame.
I had several foods I hadn’t eaten for a long time, which included Chinese and Asian street food, ham, tomato and salad sandwiches, a full English and Christmas Dinner.
Singapore special chow mein.
I cooked Christmas Dinner. I love cooking and I was very satisfied with my cooking. Roast lamb, roast beef, sprouts cooked with bacon and pear, honey glazed parsnips, glazed buttered carrots, fluffy roast potatoes and breaded mushroom for starter. I’m very impressed with the progress that I am making.
I cooked this Christmas Roast.
It also feels like my weight has stabilised. I don’t weigh myself, but I don’t think I’m putting on anymore either – which is a relief.
I’m going on holiday to India next year, so I need to be flexible with my eating, and I want to learn to eat according to hunger and fullness. I experience hunger so infrequently. I didn’t feel it at all when I wasn’t eating, so anytime when I feel slightly hungry or slightly full is a time of excitement for me. I’m focusing intently on my stomach and tummy before, during and after eating. I’ve now had two very subtle feelings of fullness. I can’t believe how excited I feel at feeling hungry or full. Life is bizarre.
I can’t believe how wonderful a ham sandwich tastes.
Things are going well. I still get some intense thoughts about eating or restricting, and shopping disturbed me so much that it triggered my neuro-muscular condition, but overall my recovery is going well.
I’m going to stay with supportive friends over the holiday period. I’m feeling excited to be spending time with them again.
However, I’m very anxious about changes in my routine and having different foods for lunch and dinner. My breakfast and snacks will remain the same.
What can I do to stay safe?
Attend the online mutual aid groups that are working for me
Stay in telephone, WhatsApp and email contact with others in recovery
Be honest with my friends if I am struggling
Prepare lunch and snacks to take out with me – I can’t choose food in the community if I’m hungry, it panics me
Read recovery literature
Focus on this meal. The only meal I can eat is the one in front of me
Expect emotional discomfort – it’s OK to feel
I’ve also discovered that a recovery group called anorexic and bulimic anonymous have a 24 hour meeting that I can pop into for as long or short a time as I want to. anyone with a desire to stop unhealthy eating practices can attend. It’s from 10pm (EST) on Christmas eve till 10pm (EST) Christmas day. It’s on zoom and the meeting code is 862 815 9185.
I’ll also be in touch with my nutritionist/therapist, I speak with him on Christmas eve. The friends I am staying with are incredibly laid back, and they are not concerned whether I eat from my plan or eat with them. So if being flexible, and eating with them isn’t right then I can revert to my plan.
Having an eating disorder is hard work, and these early stages of recovery have been frightening, difficult, shameful and incredibly rewarding. My history has been to come out of long periods of anorexic restriction, only to flip into bulimia or compulsive over-eating.
This time is different, it hasn’t been plain sailing, and I have flipped between the three states. But I have made significant progress and can see stability coming through. So much so that I’ve had a lot of peace around food over the past week. I put that down to my supportive peers, my online community, attending mutual aid, and a reconnection with my spiritual pathway.
This week’s success have been:- Asking a friend to cook me a meal of his choice and allowing him to sort out my portion, and eating 1 slice of Jam Roly Poly, a food which I have previously binged on. I can’t afford to play the game of safe/unsafe foods – that will only take me back down the road of only eating 1 ciabatta a day. I’m not going there.
I have one more challenge this week, to go to a cafe and eat a fried vegetarian breakfast.
Keep smiling
My afternoon snack – 2 scones with butter and jam.
Today I looked myself in the eye, I paused and looked at my face, and I looked well.
Breathe – I look well.
This was a very special experience for me. When my eating disorder ruled my life I loved feeling my bones. Rightly or wrongly I got joy from doing so, it was as if I was touching my essence. But to do so I was killing me, harming me, putting my life at risk of serious injury, illness and death. I wasn’t in denial. I knew that I was doing so, and I didn’t care.
Today I had a sober day in my eating practice. I had three meals and three snacks. Other than the occasional over-eating I have followed my meal plan for three months now.
And today, I looked myself in the eye and I looked well. I CAN lovingly nurture my body and look and feel well – even if I’m not happy with my weight gain.
This morning I dropped off my 30 inch waist jeans at a charity collection point. I would love to keep them. I still want to fit into them again, but not as much as I want photography, travel and study. I cannot keep one foot in anorexia and one in recovery. I am not willing to let go of my passion, photography is of more value to me than chasing the impossible, unobtainable anorexic goal post of the ever decreasing number.
My recovery from anorexia and bulimia is sometimes frustrating. With the aid of my nutritionist I am now eating. I’m eating healthier than I ever have done, and I enjoy it. But I’ve put on weight and I have that voice in my head calling me fat and disgusting. Despite this I binged last night.
I won’t compensate, I won’t purge, I’ll follow what I’m meant to eat today.
My eating disorder is not about food. It’s a symptom of my desire and need for control because I find life scary, intolerable at times. I want to change how I feel. Recovery is scary because my feelings come back, because my powerlessness over life comes back.
I will keep plodding on despite being scared. Despite my ups and downs. Two steps forwards and one step back is still a step forward.
The ups
Eating public is highly uncomfortable, I don’t like doing it. But it was time for my snack. I reminded myself that if anyone notices they just see a person eating. For many people this is so normal they wouldn’t even notice. If they had noticed they wouldn’t see an anorexic eating, they would just see a guy eating. Do I identify myself too much as an anorexic, rather than a person with a mental illness? The seagull was the only one who noticed.
Two hours later and I’m now in a cafe and am about to have two chicken salad sandwiches. My meal plan for today is two ciabattas with jam, but I can’t get that in a cafe. I took advice from somebody who is further along in their recovery than I am. As chicken is on my plan (day 5) then I can have the chicken, I’m used to it, and it means that I’m not introducing a new food unplanned. New foods are tricky and are best eaten at home. It feels like everyone is staring at me.
The downs
I purged on Wednesday. It’s irrelevant how I purged, but I did. That’s a relapse. It left me feeling distant from the people who love me and my support network. Purging brought up feelings of shame, guilt and worthlessness. I felt useless and had thoughts of not attending my self-help group. Addictive behaviour makes my world smaller, and hand on heart 💓, I deserve better.
The love
Despite fearing rejection I got honest. I told people that I have built trust with, my long-term friends, and I also shared about it in a self help group that I attend. I was treated with love, gentleness, kindness and understanding. People called me after the meeting and helped me to explore why I did it.
The why
I have so many thoughts about food, about bingeing, about starving myself. Its obsessive, it dirsturbs me. I hate those thoughts. The way that I purged isnt important. It takes those crazy food thoughts away from me and brings some relief. But it also puts me at risk in so many ways. My paranoia and anxiety increase.
The solution
Shopping is a trigger for me. I need to stop walking around shops just to be around food. I need to either shop online or just shop at the co-op. I know where everything is in the co-op so I can go in with a list and shop quickly. As shopping is a trigger I could message a friend before hand so that I can remain accountable, and to have someone else that cares about me aware of my discomfort.
I also need to be patient, loving, kind and gentle with myself. Recovery is a process – it’s not an instant fix. Some days I will struggle, and some times my thinking will drive me mad. I’m going to have to learn to sit in discomfort. Many of my peers in the self help group have been recovered for years. I can’t force myself to be at their stage. I need to give myself permission to be where I am, and to keep moving forward. Hope will help me with this. Knowing that others have been through this and come out of the otherwise is inspiring. Richard, I love you. Richard, eating is the loving thing to do. You’re so worth it.
The last half of the sandwich was so hard to eat. It looks to much for me. But my therapist, nutritionist says this is the right amount for now.
This is my story, which has been published today in The Sociological Mail. If you like to read about current affairs, lifestyle, psychology and sociology, and to hear diverse viewpoints, then its worth popping over and becoming a follower. Shenaka has published all of my photo-essays, which I am very grateful for, and she welcomes new contributors.
Disclaimer: This article covers sensitive subjects which may not be suitable for certain audiences.
For just over a year I have been producing photography about anorexia, bulimia, and binge eating disorders. This is the beginning of a photographic body of work which I intend to exhibit. I have had an eating disorder since I was 17 years old, which for me has predominantly been anorexia. Shaneka from The Sociological Mail has given me the opportunity to tie these projects together and to share about my history with an eating disorder.
I can only speak from my own experience. I am not an expert in the field, and I am not medically trained, but I have a lot of knowledge about eating disorders. I think that it’s common for people with eating disorders to arm themselves with information, I most certainly have. The anorexic brain becomes distorted and narrowly focused. It does this because the brain isn’t getting the nourishment which it requires to function, and hormone production increases around hunger and appetite cues. Thoughts about food increase to the point of obsession, and for me this also includes a focus upon my eating disorder. I have spent hours of my life reading about anorexia from all sources, I do particularly enjoy peer reviewed research. There have been a few occasions when I have had to correct professionals who don’t know the correct information, or when they have tried to coerce me into doing things their way. The knowledge that I have gained has become a barrier to accepting treatment, and hand on heart, that’s why I spent those hours reading. It has been a brick wall that has kept anorexia and I within, defending ourselves against those who were assaulting us by trying to cajole, manipulate or compel me to eat. Ultimately the justifications that I have used have harmed me, because I have been compelled to have treatment under the Mental Health Act, against my wishes. My refusal to have treatment has damaged my body and my mind. The consideration of treatment, having to eat and recovery have filled me with fear.
Fear has been a recurring theme throughout my life, and I think that there is a link between my eating disorder and fear. I experienced a lot of trauma during my childhood, repeatedly and in many forms. I had a violent alcoholic step-father, and a mother that didn’t protect me or my siblings from his violence. Sadly Mum was also violent and emotionally abusive, and she was inconsistent, giving and withholding love. As a young child, I had to learn to read people, it was self-protection – “what do I need to do to stay safe today”. This hasn’t left me, and my body and mind are always alert to potential risk. Unfortunately, this even impacts upon my closest friendships. I was also abused sexually, and when I informed my mother and (the latest) step-father I was ignored. From early on I knew that it didn’t matter whether I did well or failed, I would be in trouble anyway.
I took an overdose when I was 17. I can’t tell you why because I don’t know. As soon as I had taken it I went to hospital because I hadn’t intended to do it. However, it was a turning point that led to the onset of my anorexia. My mum threw me out because I had overdosed and I couldn’t tell her why I had done so. I moved into a friends caravan and I started to unravel.
I had never heard of anorexia, bulimia or self-harm, but I started cutting myself and restricting calories. I would eat two slices of toast with mustard each day, and vomit as soon as I had eaten it. Surprisingly, I had no support from the mental health services for a couple of years, and it took until my early twenties to get diagnosed with anorexia – binge/purge subtype. By this point, I had so many difficulties that we didn’t get anywhere with my eating disorder, nor my other mental health issues. I had several hospital admissions because of suicidality and depression, and my eating disorder continued. There were short periods of rapid weight gain due to binging, which were then followed by rapid weight loss because of restricting.
When the opportunity came along for me to use amphetamine I did. By this point, I was aware that it speeds up the metabolism and reduces the desire to eat. It was successful on that level, but my mental health worsened with the development of intense paranoia. I started to distrust my friends and became so scared of them that I walked out of my flat, got a train halfway across the country, and ended up in a homeless hostel. Paranoia is a feature of my poor mental health, and I am sure that the amphetamine contributed towards its development.
I progressed from using amphetamine to heroin, which precipitated a further crisis, but one which meant I became ready and willing to take responsibility for, and the necessary action to change my life. When I got clean I knew that I had to eat because if I didn’t then I was unlikely to stay away from substances. So I started eating three meals a day. Gradually my portions increased, and I put on more weight than I needed to. I was fully aware that missing a meal was risk-taking behaviour, and I stuck solidly with the plan for 6 years. Although by now I had progressed to over-eating with regular binges. Then every now and again I would miss a meal. It really wasn’t a regular thing, to begin with, but over time those missed meals increased. I liked the sense of power, being able to overcome hunger by not eating. I experienced a strong feeling of being in control, so the number of meals that I missed increased. The period from when I started missing meals and back to intense anorexic behaviour took several years. But once I had started missing meals and experiencing the feeling of power and control that came with it, then it was inevitable that fully restrictive behaviour would ensue.
My wife and I separated, and I moved and found new employment. The work was intense, and I stopped having lunch. I didn’t eat breakfast by this point, and my evening meal consisted of a bread roll sliced in two, with half a tin of tuna on top of each piece, and sometimes with cheese on top (if I had the cheese it was toasted and lots of black pepper). I lost weight very quickly.
One meal a day went down to not eating at all. I mean nothing. I went 52 days with only fluids – I have to say I was fu)*i:g nuts at this point. I couldn’t think properly, my memory went, I couldn’t answer peoples questions because my brain had shut down. I guess it was preserving the essentials for survival and switching everything else off. Not eating for these kinds of long periods is both easy and hard. The obsession and compulsion to resist food is overwhelming and coupled with an obsession to buy and hide food, to write out recipes, watch all the tv cookery shows, and to cook for friends. I loved to smell food. At that point, just smelling food felt like it was filling me up.
The compulsion to not eat was what made not eating easy, I can’t explain what that’s like. Perhaps it’s similar to determination, but 100 times stronger. It’s a fixation, it doesn’t matter what you say to me, I will not eat. It doesn’t matter what I say to me, what I think, rationalisation – I WILL NOT EAT. My self-hatred increased over this period of “fasting” I didn’t try to fight it, just accepted that it was linked to not eating, and my self harm returned, but that’s OK because I’m not eating. With hindsight I can say that the more people tried to get me to eat, or put pressure on me too, the firmer my determination to not eat became. Again it’s that sense of control. My whole life felt out of control, except for the will that I had to not eat and to control the size of my body, and no matter how hard you tried, you could not take that away from me.
The worst experience was the self-hatred, shouting at myself, calling myself names, and the self-harm. I’ve self-harmed before, as a coping mechanism, and it’s been (for want of a better word) gentle. However, during this period I cut aggressively out of anger, rage, and hatred. I cut names into my legs and chunks out of my arms. When I look back on that time I have empathy for myself, I actually feel sorry for myself. How I treated and spoke to myself at that point was tragic, it brings a tear to my eye to think of it.
I was referred to a community mental health team and could attend their day centre. It was a safe space, daily occupation and it provided me with a connection with other people. I used the centre to help me get back into a pattern of eating, it was a slow process, and I was allowed to go at my own pace. They had no eating disorder training so they observed and encouraged but ultimately left me to sort out and manage my own recovery.
After not eating for so long the brain produces hormones to make you feel hungry, which is why there is often an obsession with food for many people with anorexia. For some of us, it also means that when you begin to eat again there can be an overwhelming urgency to do so, it certainly did for me. My food slowly increased and developed into compulsive overeating, and I put all the weight that I had lost back on, and more. It took six months to do so, and then I stopped eating again. Without effective treatment, the cycle continues.
My anorexia is extreme. I don’t restrict food like many, I completely stop eating. I still drink coffee with skimmed milk, herbal tea, and juice, but I won’t have any food at all. My mind becomes so rigid, fixated on not eating, I am either thinking about not eating, researching anorexia, or hoarding food. I spent so much money on food with absolutely no intention of eating it. It got so bad that a friend had to come around and clear my flat out. It’s such a strange compulsion, to starve and be obsessed with food. I wish there was a way that I could put into words just how strong both obsessions are. There is just nothing that I can compare it too. Hoarding is a common symptom of starvation and anorexia, which was also demonstrated by the Minnesota experiment (https://www.apa.org/monitor/2013/10/hunger.aspx).
This period of not eating lead to me, once again, being sectioned under the Mental Health Act. I had stopped eating for 56 days at this point, and I had refused all of their offers of help, including meal replacement. I really did not believe that there was anything wrong with me at all. Thing is, I have other mental health problems as well as an eating disorder, and these include anxiety, paranoia and suicidal ideation. There are times when not eating reduces or stops these symptoms. Not always, but this was a time in which my I became symptom free, and that makes me feel well. Who would want to change if they were free from other overwhelming and disabling symptoms?
I was given the option of having meal replacement drinks and building up my calories or going into the medical hospital for nasogastric feeding. I chose the meal replacement. It really wasn’t easy, and in that hospital, I only got up to 900 calories a day. I then went to an eating disorders unit as an inpatient, which I found challenging, stressful and intrusive. I tried to want to be there, but having other people in control of the food which was going into my body was too difficult. I would argue with the dietician every time that we met up, was very hostile and resistant to treatment. They got my calories up, but I then asked if I could leave. I really don’t do well when others have control over me or my food, and I don’t do well as an inpatient in hospital. I never have. It makes it so hard for the professionals to work with me. I guess that’s why I am mid-forties and still sick and suffering from an eating disorder. Perhaps control is the issue rather than the food. Feeling out of control or that others are in charge of me induces intense fear, which leads me to feel like I have to escape.
Once they had discharged me I reduced my calories and started to purge every day. There was a community eating disorder therapist whom I was referred to. She was patient with me, and we developed a plan between us. I agreed to get to a minimum of 1200 calories per day. This was to be an initial target and is based upon the fact that with 1200 calories our organs can function. It’s the level that a patient would be given if they were in a coma. The other thing that she was very clear about was that I needed to have blood pressure, blood tests, and an ECG each week. If any of these indicated that I needed medical care, either as an inpatient or outpatient then I had to have it. It was made clear that if I didn’t comply then I would be detained under the Mental Health Act. She let me go at my own pace, and I slowly introduced solid foods to replace the drinks that I was on. I have to say that she was the best therapist that I have had for my eating disorder. She had boundaries and limits, explained these to me, and then worked with me as an individual. She understood how strong my control issues with regard to food were, and helped me to make progress. I got to 1500 calories per day, was eating solid food most of the time, and my physical health was improving.
Unfortunately, I got a sudden bout of depression and tried to kill myself. Whilst in the psychiatric hospital I started to binge. The staff on general psychiatric wards in the UK are generally not eating disorder trained, and they do not help a patient with anorexia to either eat or build up eating slowly. Having so much access to food after a long period of starvation sent those hormones wild again. The hunger was intense, and the amount of food that I would eat left me in pain all of the time. After eating the hospital dinner I would call up a take away, order a meal deal for two or three people, and sit and eat all of it. There was no real enjoyment of the food, just an insatiable appetite and an inability to stop eating once I had begun.
I find it so sad that I have been through all of this, and the harm that my poor body has had to cope with. Getting the right treatment for eating disorders in the UK does not always happen. I have no specialised eating disorder support at the moment, and this is a common issue for many sufferers. Part of it is the area that I live. In the UK each individual health authority decides how it is going to spend its budget, and which services it will commission. Here they funded one community eating disorder therapist to cover the whole county. She has changed role recently and hasn’t been replaced, and neither has the dietician who left last year.
So how did I get to this point on this occasion? My compulsive overeating following the last hospital admission led to me developing diabetes. I am terrified of the doctors and the hospital, so I looked into the research results from Newcastle University into reversing type two diabetes. They put their patients onto a very low calorie diet, which is medically supervised at all stages. The diet lasts for eight weeks, and then other foods are slowly introduced. The results are astounding. Type two diabetes can be reversed. Having reviewed the research results I decided that I would create my own very low calorie diet so that I could reverse my diabetes, which I have managed to do. However, the reduction in calories soon triggered the anorexic thoughts and behaviour, and I lost control.
Something was different this time though – my photography studies. I love photography and I love studying with the Open College of the Arts. My photography has developed considerably, and so has my contact with people. I can walk up to strangers on the street and ask if I can photograph them, and I have photographed at many events and around large groups of people. I feel safe with a camera in front of my face, and the whole experience is mindfulness in action. Its like I slow down, real slow, I look and see all that is around me, completely focused, present and in the moment. In January I returned to not eating anything at all. This time I went for 18 days. During that time my motivation to study disappeared and I became depressed. I couldn’t live with the impact it had on my photography so I began to eat again. Not a lot at all, but it was enough to make a difference. This has also been a time where not eating/severe restriction has had a positive impact on the reduction of other mental health symptoms. I haven’t had suicidal thoughts for some time, my anxiety has reduced, and so has the paranoia to a degree. I still get PTSD symptoms, but these are more manageable when my other symptoms are low. My energy increased significantly as well. Lack of food intake can mean that the body produces more adrenaline and cortisol, and this increases energy. To be honest it has been an absolutely amazing time that I have really enjoyed.
I haven’t really worked with my psychiatric team, and I have done the absolute minimum that I could get away with in order to stay out of hospital. I think that I have made it look like I am working with them and want to get well, but that hasn’t been my truth on the inside, until….
I went on holiday to London. It was to be a three week holiday so that I could be a tourist, make the most of the sights and scenes in London, go to galleries, museums, gardens and theatres. It was also an opportunity for me to meet up with my fellow students. Sadly, after just a week I became really ill. I felt dizzy, sick, and thought that I was going to pass out. I got to the point of not being able to function. My motivation to study and for photography went. Then a couple of weeks afterwards I was with a close friend, we had been out in his car for about an hour and we went for a coffee. My blood pressure dropped and I was unable to walk. These incidents frightened me into realising that I need recovery and I need it now.
Recently I have been making progress, and my photography has been an important part of that process, the enjoyment of photography is my motivation for change in a way that fear of dying from anorexia is not. I now know that if I do not make a drastic attempt to recover then I will suffer more serious health problems, be unable to take photos, and risk dying. Anorexia has the highest death rate as a proportion of sufferers than any other psychiatric disorder.
People can and do recover from eating disorders and anorexia. I was aware of the statistics about partial and full recovery, as well as those who never recover, but now I have started to attend an online peer support group for people with anorexia and bulimia I have met people, who I relate to, and who are in recovery. Meeting others who are no longer affected by the symptoms of their eating disorder gives me so much hope. Peer support isn’t the only thing that I need. Although I have a psychiatric and medical team, they are not eating disorder trained, and they have not replaced their dietitian or therapist. However, I have managed to find an experienced eating disorders therapist, who is also experienced in nutrition and diet. I grew up in a family of chefs, I know what a nutritious and balanced diet is, so why can’t I just do it? I am afraid of food, there are very few foods which I eat, I am obsessed with calories. I need help to overcome these difficulties, and I also need someone whom I can build up trust with so that they can manage my meal plan until I am able to put things into practice. I need to trust them to manage the calories for me. It’s a big part of letting go of controlling behaviour.
Eating disorders are not about food, even though the symptoms suggest that they are. Eating disorders are about control. By controlling my food intake, weight and body shape, I can avoid or suppress fear, feelings, circumstances and the uncertainties of life.
Yesterday was a very big step for me. I consider it to be the first day of my recovery. Most people with anorexia go through intense obsessions with foods, watching TV shows about foods, reading recipe books, cooking for others and not eating, and some of us hoard food. Over months I spent hundreds of pounds buying food that I had no intention of eating, and hiding around the house, even though I live alone. Before I could have friends visit I informed them that they were not to touch the hoarded food. Yesterday I sorted through it, binned what was out of date, and have bagged the rest for the local food-bank. A momentous step for me, and I promise you it wasn’t easy. I cried, I felt angry, and I needed to reach out for support. But I did it. I am proud of myself for doing so, so proud that I bought myself some flowers. I earned them (written three weeks ago).
I accept that this is not going to be an easy process and that it will take time. There will be times when my emotions feel too intense and overwhelming, and the regime of three meals and snacks is frightening. With help, I have introduced a couple of new foods, cereal, and jacket potato with tuna or chili. The rest are a few select foods that I feel safe with. There are times when I feel so out of control, which isn’t surprising. Change does mean letting go of the old control measures and trying the unfamiliar. The amount of emotion that I experience around the times that I am eating now has been surprising, and often very intense. But I want to study, I want to walk around and take photos, and I cannot have that without recovery. Recovery is possible, which I now know because I have found a community of recovering people.
If you have an eating disorder or think that you may do, and are not currently receiving support then please seek help. Your doctor is important because there are so many health complications with eating disorders. Perhaps you can talk to someone who you trust and ask them to go to the doctors with you. There are also eating disorders charities in many countries around the world. They can answer questions that you may have and provide you with information and support. There are also many peer support groups around the world as well. We all have to find our own way, but we never have to do this alone.
My afternoon snack – 2 scones with butter and jam.
Beef stroganoff – cooked for me by a friend.
